How We’re Living With Purpose
January 5, 2023, by Kristin Neva This past weekend, my husband, Todd, coached our son, Isaac, in making and installing a shelf in our daughter’s bedroom. It was a corner…
Life Got A Little Easier
September 6, 2022, by Kristin Neva My husband, Todd, has ALS and is paralyzed, so not only do I cook all the meals, but I also feed him. His meals…
Flying with Broken Wings
July 20, 2022, by Kristin Neva One evening, I took my daily walk in the Nara Nature Park in Houghton, Michigan. As I made my way around a network of…
12 Years and Nothing to Say
June 12, 2022, by Todd Neva Kristin asked me several times to write something for the 12-year anniversary of my ALS diagnosis. The anniversary came and went on June 10.…
Unexpected Outcomes From Sharing Our Story
November 16, 2021 by Kristin Neva “Your YouTube channel must be taking off,” my 15-year-old daughter said. “Your edema video was recommended to me again. I was just scrolling through…
18 Years and a Love That Has Endured
August 30, 2021 by Kristin Neva My husband, Todd, and I marked 18 years of marriage on Tuesday. The memory of our seventh anniversary is seared into my mind. He…
Part of Past Life Returns When Todd Teaches Isaac to Grill
August 17, 2021 by Kristin Neva When my husband, Todd, was diagnosed with ALS, I grieved the loss of our dreams and our future together, but I had no idea…
Falling Back on Ritual in Times of Loss
November 25, 2020, by Kristin Neva A week after Todd was diagnosed with ALS, we took our children to the beach. Almost-one-year Isaac pointed to seagulls flying over Lake Michigan.…
Taking Care of Unfinished Business
August 29, 2020, by Kristin Neva “That’s the one project I wish I could have finished,” my husband, Todd, said while looking out a window at Comet’s doghouse. He had…
7 Ways Life with ALS Is Similar to Life During a Pandemic
March 31, 2020, by Kristin Neva When someone asked my husband how he is doing in light of COVID-19, Todd replied, “Our life isn’t that much different. Now everyone else…