The Chapter IN WHICH Sara Goes Away and Her Father Cries
September 2, 2024, by Kristin Neva My daughter, Sara, is beginning her freshman year at a university a couple hours from us, and last Saturday was her day to move…
Oh, The Hugs I’ve Missed; Connecting Through Our Shared Loss
August 12, 2024, by Kristin Neva “I really want to go to your performance,” my husband, Todd, told our daughter, Sara, who was starting a weeklong intensive with Eisenhower Dance…
Sara’s Graduation Was Extra Special with ALS in Picture
June 10, 2024, by Kristin Neva Last January, my sister-in-law asked what our plans were for my daughter Sara’s high school graduation. She wondered if she, my mother-in-law, and my…
We Fight for Life; The Tale of Team Blue Jay
August 28, 2023, by Kristin Neva One evening last week after I’d finished cooking dinner, I grew concerned. My almost 14-year-old son had gone out to ride his dirt bike…
Beauty in Decay, After 13 Years with ALS
June 12, 2023, by Kristin Neva As I fed my husband, Todd, his morning breakfast, a charm of yellow finches caught our attention, flitting to and from a mountain ash…
How We’re Living With Purpose
January 5, 2023, by Kristin Neva This past weekend, my husband, Todd, coached our son, Isaac, in making and installing a shelf in our daughter’s bedroom. It was a corner…
Life Got A Little Easier
September 6, 2022, by Kristin Neva My husband, Todd, has ALS and is paralyzed, so not only do I cook all the meals, but I also feed him. His meals…
Flying with Broken Wings
July 20, 2022, by Kristin Neva One evening, I took my daily walk in the Nara Nature Park in Houghton, Michigan. As I made my way around a network of…
12 Years and Nothing to Say
June 12, 2022, by Todd Neva Kristin asked me several times to write something for the 12-year anniversary of my ALS diagnosis. The anniversary came and went on June 10.…
Unexpected Outcomes From Sharing Our Story
November 16, 2021 by Kristin Neva “Your YouTube channel must be taking off,” my 15-year-old daughter said. “Your edema video was recommended to me again. I was just scrolling through…