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Sep 2, 2024September 2, 2024

The Chapter IN WHICH Sara Goes Away and Her Father Cries

Inspirational

September 2, 2024, by Kristin Neva My daughter, Sara, is beginning her freshman year at a university a couple hours from us, and last Saturday was her day to move…

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Aug 12, 2024August 9, 2024

Oh, The Hugs I’ve Missed; Connecting Through Our Shared Loss

Suffering

August 12, 2024, by Kristin Neva “I really want to go to your performance,” my husband, Todd, told our daughter, Sara, who was starting a weeklong intensive with Eisenhower Dance…

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Jun 10, 2024August 9, 2024

Sara’s Graduation Was Extra Special with ALS in Picture

Inspirational

June 10, 2024, by Kristin Neva Last January, my sister-in-law asked what our plans were for my daughter Sara’s high school graduation. She wondered if she, my mother-in-law, and my…

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Aug 8, 2023January 9, 2024

We Fight for Life; The Tale of Team Blue Jay

Inspirational

August 28, 2023, by Kristin Neva One evening last week after I’d finished cooking dinner, I grew concerned. My almost 14-year-old son had gone out to ride his dirt bike…

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Jun 12, 2023January 9, 2024

Beauty in Decay, After 13 Years with ALS

Inspirational

June 12, 2023, by Kristin Neva As I fed my husband, Todd, his morning breakfast, a charm of yellow finches caught our attention, flitting to and from a mountain ash…

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Jan 5, 2023May 29, 2025

How We’re Living With Purpose

Inspirational

January 5, 2023, by Kristin Neva This past weekend, my husband, Todd, coached our son, Isaac, in making and installing a shelf in our daughter’s bedroom. It was a corner…

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Sep 9, 2022January 9, 2024

Life Got A Little Easier

Life with ALS

September 6, 2022, by Kristin Neva My husband, Todd, has ALS and is paralyzed, so not only do I cook all the meals, but I also feed him. His meals…

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Jul 20, 2022January 9, 2024

Flying with Broken Wings

Inspirational

July 20, 2022, by Kristin Neva One evening, I took my daily walk in the Nara Nature Park in Houghton, Michigan. As I made my way around a network of…

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Jun 12, 2022June 12, 2022

12 Years and Nothing to Say

Inspirational, Life with ALS

June 12, 2022, by Todd Neva Kristin asked me several times to write something for the 12-year anniversary of my ALS diagnosis. The anniversary came and went on June 10.…

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Nov 16, 2021

Unexpected Outcomes From Sharing Our Story

Inspirational

November 16, 2021 by Kristin Neva “Your YouTube channel must be taking off,” my 15-year-old daughter said. “Your edema video was recommended to me again. I was just scrolling through…

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Kristin Neva: Copper Island Author and Artist

Fiction from The Ragged Edge of Faith

Get a Copper Island Novel on Amazon, because sometimes there's more truth in fiction. Kristin writes on themes of love and loss in The Copper Island Novels, which feature a character with ALS.

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