Our Story

The Nevas 2012

In June of 2010, Todd Neva was diagnosed with ALS. Amyotrophic lateral sclerosis, also known as Lou Gehrig’s disease, is a progressive neuro-muscular disease that results in total paralysis and eventual death, usually in three to five years. Todd was 39 years old at the time, and he and his wife, Kristin, had two young children.

In our grief, we were comforted by books written by others who face grief and disability. In addition to reading, we wrote of our thoughts, feelings, and experiences during the year after the diagnosis. Kristin wrote in her journal and we both blogged.

Out of character from our normally reserved, private lives, we decided to turn our writings into a book with the hope that others will know that they are not alone.

“We read to know we are not alone,” the character, C.S. Lewis, said in the movie Shadowlands.

The book Heavy follows the gut-wrenching first year after the diagnosis. And we continue to blog on this site with the prayer that you will be comforted.

Then What Happened?

If you’ve already read Heavy, you may have felt that we left you hanging. What happened?

Did we sell the house? Did God heal Todd?

Though God has not answered our prayer for healing, He did allow our house to sell in His own perfect timing.

Here is how Todd’s prayers may have sounded if he could’ve heard both sides of the conversation:


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