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Category: Life with ALS

10 Posts
Sep 6, 2022January 5, 2023

Life Got A Little Easier

Life with ALS

September 6, 2022, by Kristin Neva My husband, Todd, has ALS and is paralyzed, so not only do I cook all the meals, but I also feed him. His meals…

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Jun 12, 2022June 12, 2022

12 Years and Nothing to Say

Inspirational, Life with ALS

June 12, 2022, by Todd Neva Kristin asked me several times to write something for the 12-year anniversary of my ALS diagnosis. The anniversary came and went on June 10.…

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Mar 31, 2020August 17, 2021

7 Ways Life with ALS Is Similar to Life During a Pandemic

Life with ALS 1

March 31, 2020, by Kristin Neva When someone asked my husband how he is doing in light of COVID-19, Todd replied, “Our life isn’t that much different. Now everyone else…

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Mar 8, 2020August 17, 2021

Living Life While Taking Precautions

Life with ALS

March 8, 2020, by Kristin Neva After three weeks of my husband, Todd, being cloistered in our home with a cold, we ventured out Saturday for Michigan Tech’s last home…

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Oct 28, 2019August 17, 2021

Just Breathe: Dealing with Chronic Stress

Life with ALS

October 28, 2019, by Kristin Neva ALS is now affecting my husband’s breathing. On occasion, Todd’s lungs fill with fluid and he needs me to give him an assisted cough,…

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Sep 9, 2019August 29, 2021

Learning New Skills I Wish I Didn’t Need

Life with ALS

September 9, 2019, by Kristin Neva [This article was written for ALS News Today prior to Todd’s surgery to insert a PEG tube on August 12, 2019. Keep reading after the…

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Aug 20, 2019August 17, 2021

Oddly Normal Déjà Vu

Inspirational, Life with ALS 1

August 20, 2019, by Kristin Neva Life with ALS is absurd when I think about it. It’s so different than it was before the disease, and with each setback, life…

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Jul 16, 2019August 17, 2021

Fighting Is Winning

Life with ALS 1

July 16, 2019, by Kristin Neva I am by nature a fixer. After my husband, Todd, was diagnosed with ALS, I found out modern medicine didn’t provide a cure. There’s…

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Mar 6, 2019August 17, 2021

Dusty Road

Life with ALS

March 6, 2019, by Kristin Neva “Remember that you are dust, and to dust you shall return.” That truth, which the church is called to consider on Ash Wednesday, is…

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Dec 10, 2018August 17, 2021

Legacy of George HW Bush Seen in Quality of Life of People with Disabilities

Life with ALS

December 10, 2018, by Kristin Neva I cried as I listened to a tribute to George H. W. Bush, realizing how much he impacted our lives. In 1990, he signed…

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Fiction from The Ragged Edge of Faith

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