Finding Meaning Together After 16 Years with ALS
September 12, 2026, by Kristin Neva My husband, Todd, and I celebrated our 23rd wedding anniversary this week. We’ve spent 16 of those years with ALS since Todd’s diagnosis in…
Category: Life with ALS
10 Posts
Life Got A Little Easier
September 6, 2022, by Kristin Neva My husband, Todd, has ALS and is paralyzed, so not only do I cook all the meals, but I also feed him. His meals…
12 Years and Nothing to Say
June 12, 2022, by Todd Neva Kristin asked me several times to write something for the 12-year anniversary of my ALS diagnosis. The anniversary came and went on June 10.…
7 Ways Life with ALS Is Similar to Life During a Pandemic
March 31, 2020, by Kristin Neva When someone asked my husband how he is doing in light of COVID-19, Todd replied, “Our life isn’t that much different. Now everyone else…
Living Life While Taking Precautions
March 8, 2020, by Kristin Neva After three weeks of my husband, Todd, being cloistered in our home with a cold, we ventured out Saturday for Michigan Tech’s last home…
Just Breathe: Dealing with Chronic Stress
October 28, 2019, by Kristin Neva ALS is now affecting my husband’s breathing. On occasion, Todd’s lungs fill with fluid and he needs me to give him an assisted cough,…
Learning New Skills I Wish I Didn’t Need
September 9, 2019, by Kristin Neva [This article was written for ALS News Today prior to Todd’s surgery to insert a PEG tube on August 12, 2019. Keep reading after the…
Oddly Normal Déjà Vu
August 20, 2019, by Kristin Neva Life with ALS is absurd when I think about it. It’s so different than it was before the disease, and with each setback, life…
Fighting Is Winning
July 16, 2019, by Kristin Neva I am by nature a fixer. After my husband, Todd, was diagnosed with ALS, I found out modern medicine didn’t provide a cure. There’s…
Dusty Road
March 6, 2019, by Kristin Neva “Remember that you are dust, and to dust you shall return.” That truth, which the church is called to consider on Ash Wednesday, is…