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Category: Life with ALS

10 Posts
Jun 10, 2017August 17, 2021

Seven Years Takes a Toll

Life with ALS

June 10, 2017, by Kristin Neva Driving home after dropping the kids off for their last day of school, I was struck by the natural beauty around me. Lilacs blooming.…

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Aug 27, 2016August 18, 2021

Addition Update 2

Life with ALS

August 27, 2016, by Todd Neva We have shingles, soffits, and windows installed. The siding is on two thirds of the caregiver’s addition, and the rough-in plumbing for the in-floor…

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Jul 30, 2016August 18, 2021

Addition Update

Life with ALS

July 30, 2016, by Todd Neva The addition is moving along quickly. It’s framed, and we’ll have it weathertight on Monday. I’ve been overwhelmed by the support, both financially and…

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Jul 24, 2016August 18, 2021

Caregiver Addition

Life with ALS

July 24, 2016, by Kristin Neva “On nights like these, I wish I were in heaven, ” Todd said when, at six this morning, he asked me to put him…

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Jul 7, 2016August 18, 2021

Roughing It

Life with ALS

July 7, 2016, by Kristin Neva Fourteen years ago, when Todd and I had just started dating, we drove to the UP with friends to go kayaking. The day ended…

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Jan 22, 2016August 18, 2021

She’s Not Me

Life with ALS

January 22, 2016, by Todd Neva “You’re Not You” (2014, Hilary Swank and Emmy Rossum) was the hardest movie I’ve ever watched. I stopped it two times before finally buckling…

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Aug 5, 2015August 18, 2021

God’s Gift of Ignorance

Life with ALS

August 5, 2015, by Todd Neva I thought my days of eating at The Fitz were over, but I keep finding creative ways to overcome obstacles. In this case, Kristin’s…

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Jun 10, 2015August 18, 2021

The Clock is Ticking

Life with ALS

June 7, 2015 by Todd Neva Five years ago today, my life was divided into before and after a neurologist diagnosed me with ALS. A family friend had recently died…

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May 11, 2015August 18, 2021

Let Us Add Eggs

Life with ALS

May 11, 2015, by Todd Neva “I don’t believe your research,” a client at a large food manufacturer said twenty years ago. “The survey shows more people baking from scratch,…

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Apr 19, 2015August 18, 2021

A Little Miracle

Life with ALS

April 19, 2015 by Kristin “That was ideal!” “I wouldn’t say that.” Todd said. Viruses and ALS do not mix well. Todd can’t turn over in bed, so there is…

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KristinNeva.com

Fiction from The Ragged Edge of Faith

Get a Copper Island Novel on Amazon, because sometimes there's more truth in fiction. Kristin writes on themes of love and loss in The Copper Island Novels, which feature a character with ALS.

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