Legacy of George HW Bush Seen in Quality of Life of People with Disabilities
December 10, 2018, by Kristin Neva I cried as I listened to a tribute to George H. W. Bush, realizing how much he impacted our lives. In 1990, he signed…
Category: Life with ALS
10 Posts
Seven Years Takes a Toll
June 10, 2017, by Kristin Neva Driving home after dropping the kids off for their last day of school, I was struck by the natural beauty around me. Lilacs blooming.…
Addition Update 2
August 27, 2016, by Todd Neva We have shingles, soffits, and windows installed. The siding is on two thirds of the caregiver’s addition, and the rough-in plumbing for the in-floor…
Addition Update
July 30, 2016, by Todd Neva The addition is moving along quickly. It’s framed, and we’ll have it weathertight on Monday. I’ve been overwhelmed by the support, both financially and…
Caregiver Addition
July 24, 2016, by Kristin Neva “On nights like these, I wish I were in heaven, ” Todd said when, at six this morning, he asked me to put him…
Roughing It
July 7, 2016, by Kristin Neva Fourteen years ago, when Todd and I had just started dating, we drove to the UP with friends to go kayaking. The day ended…
She’s Not Me
January 22, 2016, by Todd Neva “You’re Not You” (2014, Hilary Swank and Emmy Rossum) was the hardest movie I’ve ever watched. I stopped it two times before finally buckling…
God’s Gift of Ignorance
August 5, 2015, by Todd Neva I thought my days of eating at The Fitz were over, but I keep finding creative ways to overcome obstacles. In this case, Kristin’s…
The Clock is Ticking
June 7, 2015 by Todd Neva Five years ago today, my life was divided into before and after a neurologist diagnosed me with ALS. A family friend had recently died…
Let Us Add Eggs
May 11, 2015, by Todd Neva “I don’t believe your research,” a client at a large food manufacturer said twenty years ago. “The survey shows more people baking from scratch,…