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Aug 30, 2021August 30, 2021

18 Years and a Love That Has Endured

Inspirational

August 30, 2021 by Kristin Neva My husband, Todd, and I marked 18 years of marriage on Tuesday. The memory of our seventh anniversary is seared into my mind. He…

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Aug 17, 2021May 29, 2025

Part of Past Life Returns When Todd Teaches Isaac to Grill

Inspirational

August 17, 2021 by Kristin Neva When my husband, Todd, was diagnosed with ALS, I grieved the loss of our dreams and our future together, but I had no idea…

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Nov 25, 2020August 17, 2021

Falling Back on Ritual in Times of Loss

Inspirational

November 25, 2020, by Kristin Neva A week after Todd was diagnosed with ALS, we took our children to the beach. Almost-one-year Isaac pointed to seagulls flying over Lake Michigan.…

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Aug 29, 2020August 17, 2021

Taking Care of Unfinished Business

Inspirational

August 29, 2020, by Kristin Neva “That’s the one project I wish I could have finished,” my husband, Todd, said while looking out a window at Comet’s doghouse. He had…

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Mar 31, 2020August 17, 2021

7 Ways Life with ALS Is Similar to Life During a Pandemic

Life with ALS 1

March 31, 2020, by Kristin Neva When someone asked my husband how he is doing in light of COVID-19, Todd replied, “Our life isn’t that much different. Now everyone else…

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Mar 8, 2020August 17, 2021

Living Life While Taking Precautions

Life with ALS

March 8, 2020, by Kristin Neva After three weeks of my husband, Todd, being cloistered in our home with a cold, we ventured out Saturday for Michigan Tech’s last home…

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Nov 4, 2019August 17, 2021

The Art of Choosing a Family-Friendly Movie

Inspirational

November 4, 2019, by Kristin Neva Friday movie night has become our favorite pastime, as it’s something we can still enjoy as a family despite my husband Todd’s paralysis. We…

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Oct 28, 2019August 17, 2021

Just Breathe: Dealing with Chronic Stress

Life with ALS

October 28, 2019, by Kristin Neva ALS is now affecting my husband’s breathing. On occasion, Todd’s lungs fill with fluid and he needs me to give him an assisted cough,…

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Oct 21, 2019August 17, 2021

No Guarantees, but We Have Choices

Suffering

October 21, 2019, by Kristin Neva “What? But there’s a guarantee on your website,” I told the customer service representative for the herbal company. I had requested a refund of…

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Sep 9, 2019August 29, 2021

Learning New Skills I Wish I Didn’t Need

Life with ALS

September 9, 2019, by Kristin Neva [This article was written for ALS News Today prior to Todd’s surgery to insert a PEG tube on August 12, 2019. Keep reading after the…

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Kristin Neva: Copper Island Author and Artist

Fiction from The Ragged Edge of Faith

Get a Copper Island Novel on Amazon, because sometimes there's more truth in fiction. Kristin writes on themes of love and loss in The Copper Island Novels, which feature a character with ALS.

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