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Finding Meaning after a Terminal Diagnosis

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Author: Todd Neva

10 Posts
Jun 22, 2016August 18, 2021

Mr. Mayor

Inspirational

I am Mr. Mayor. Isaac places a Lego minifigure in my useless, supinated palm. I announce, “Hello, Lego City.” (Hear in your mind Robin Williams’s voice from Good Morning, Vietnam.) Play begins, usually…

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Jun 10, 2016August 18, 2021

I’ve Lived to See My Son’s Graduation

Inspirational

June 11, 2016, by Todd Neva In our memoir Heavy, Kristin described a dream she had months following my ALS diagnosis on June 11, 2010. “God called to me and said,…

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Apr 18, 2016August 18, 2021

The Long Haul

Inspirational, Suffering

April 18, 2016, by Kristin Neva My faith is shaken when I’m sleep-deprived. Immobile in bed, Todd’s joints ache, and he calls me to turn him. I wake in the…

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Mar 24, 2016August 18, 2021

White Suit Pink Shirt

Inspirational

March 24, 2016, by Todd Neva Kristin’s father, David Edward Siirtola, passed away a couple days ago. This photo epitomizes who he was, although he only wore that suit once…

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Jan 22, 2016August 18, 2021

She’s Not Me

Life with ALS

January 22, 2016, by Todd Neva “You’re Not You” (2014, Hilary Swank and Emmy Rossum) was the hardest movie I’ve ever watched. I stopped it two times before finally buckling…

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Nov 23, 2015August 18, 2021

Three Thanksgivings

Inspirational

November 23, 2015, by Kristin Neva I try to practice gratitude. I have a long list of things for which I am thankful: Being married to my best friend. The…

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Sep 29, 2015August 18, 2021

Miss Joy

Inspirational

September 29, 2015, by Kristin Neva Sara jumped off the court and threw the ball into the basket, winning a round of lightning. She turned to me and smiled, and…

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Sep 7, 2015August 18, 2021

Don’t Rush It

Inspirational

September 7, 2015, by Todd Neva “How does it feel to be six?” Kristin asked Isaac last Monday. “You know, I’m almost seven,” he said. “Oh no, don’t rush it.”…

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Aug 11, 2015August 18, 2021

Be Careful What You’re Thankful For

Suffering

August 11, 2015, by Kristin Neva We’ve had a few rough days. As Todd’s health declines, our old method of transferring him works only some of the time—when his feet aren’t too…

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Aug 5, 2015August 18, 2021

God’s Gift of Ignorance

Life with ALS

August 5, 2015, by Todd Neva I thought my days of eating at The Fitz were over, but I keep finding creative ways to overcome obstacles. In this case, Kristin’s…

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Kristin Neva: Copper Island Author and Artist

Fiction from The Ragged Edge of Faith

Get a Copper Island Novel on Amazon, because sometimes there's more truth in fiction. Kristin writes on themes of love and loss in The Copper Island Novels, which feature a character with ALS.

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